Canadian Organization for Rare Disorders
{{Short description|Canadian charity}}
{{Use dmy dates|date=January 2024}}
{{Infobox organization
| name = Canadian Organization for Rare Disorders
| image = Image:Canadian Organization for Rare Disorders logo.jpg
| type = Non-Profit Registered Charity
| location = Suite 600, 151 Bloor St W, Toronto, Ontario, M5S 1S4, Canada
| key_people = President Durhane Wong-Rieger
Vice President Kirsten Harkins
Treasurer John Adams
| area_served = Canada
| focus = rare disorders, rare diseases, and advocacy
| homepage = {{URL|raredisorders.ca}}
}}
The Canadian Organization for Rare Disorders (CORD) is a Canadian registered charity that is a network of organizations who represent people affected by rare diseases. CORD's purpose is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.{{Cite web| title=CORD Homepage | url=http://raredisorders.ca}}{{Cite web| url=http://www.istl.org/07-fall/internet1.html| title= Rare Disease Resource Page | accessdate=22 April 2010}}
Overview
CORD represents the orphan disorders community in the development of Canadian Orphan Drug Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories. CORD is working to ensure Canada's Clinical Trials Registry works effectively for those with rare disorders. CORD is committed to increasing access to genetic screening and genetic counseling for all rare disorders. Currently, Durhane Wong-Rieger is the President of CORD.{{Cite web | url=http://www.geneticalliance.org/organization/canadian-organization-rare-disorders | title=Genetic Alliance advocacy | access-date=23 April 2010 | archive-url=https://web.archive.org/web/20100613224831/http://geneticalliance.org/organization/canadian-organization-rare-disorders# | archive-date=13 June 2010 | url-status=dead | df=dmy-all }}{{Cite web | title=About CORD | url=http://raredisorders.ca/aboutUs.html | url-status=dead | archiveurl=https://web.archive.org/web/20100725120950/http://raredisorders.ca/aboutUs.html | archivedate=25 July 2010 | df=dmy-all }}
Their national offices are located in Toronto, Ontario, with an Alberta chapter located in Edmonton, Alberta.{{Cite web | url=http://search.hipinfo.info/record/BTN4426 | title=Halton Community Service Database | access-date=22 April 2010 | archive-url=https://web.archive.org/web/20110721090929/http://search.hipinfo.info/record/BTN4426# | archive-date=21 July 2011 | url-status=dead | df=dmy-all }}
See also
- Rare diseases
- National Organization for Rare Disorders – American-based organization
- European Organization for Rare Diseases
- Rare Disease Day
References
{{Reflist}}
External links
- [http://www.raredisorders.ca/ Official Website]
- [https://www.facebook.com/RareDisorders CORD] Fan Page on Facebook
{{DEFAULTSORT:Canadian Organization For Rare Disorders}}
Category:Health charities in Canada
Category:Medical and health organizations based in Ontario