Health information exchange
{{short description|Mobilization of health care information electronically across organizations}}
{{distinguish|text=}}
Health Information Exchange (HIE) refers to the electronic mobilization of health care information across organizations within a region, community, or hospital system. Participants in the data exchange are collectively called Health Information Networks (HINs). HIE may also refer to the Health Information Organization (HIO) that facilitates the exchange. The primary goal of HIE is to facilitate access to and retrieval of clinical data to support public health authorities in analyzing the health of the population.
In the United States, Formal organizations support financial grants for statewide health information exchange grants from the Office of the National Coordinator for Health Information Technology. These grants were legislated into the HITECH components of the American Recovery and Reinvestment Act of 2009.{{cite web|url=http://healthit.hhs.gov/portal/server.pt?open%3D512%26objID%3D1488%26parentname%3DCommunityPage%26parentid%3D58%26mode%3D2%26in_hi_userid%3D11113%26cached%3Dtrue |title=State Health Information Exchange Cooperative Agreement Program |website=The Office of the National Coordinator for Health Information Technology |publisher=U.S. Department of Health & Human Services |date=27 January 2011 |access-date=December 23, 2010 |url-status=dead |archive-url=https://web.archive.org/web/20110209220531/http://healthit.hhs.gov/portal/server.pt?open=512&objID=1488&parentname=CommunityPage&parentid=58&mode=2&in_hi_userid=11113&cached=true |archive-date=February 9, 2011 }} Regional Health Information Organizations, or RHIOs, are typically geographically defined entities that develop and manage a set of contractual agreements, arrange for the means of electronic exchange of information, and develop and maintain HIE standards.{{cite journal |vauthors=Overhage JM, Evans L, Marchibroda J |title=Communities' readiness for health information exchange: the National Landscape in 2004 |journal=J Am Med Inform Assoc |volume=12 |issue=2 |pages=107–12 |year=2005 |pmid=15561785 |pmc=551542 |doi=10.1197/jamia.M1680 |url=http://www.jamia.org/cgi/pmidlookup?view=long&pmid=15561785}} Federal and state regulations regarding HIEs and health information technology (HIT) are still being defined. Federal regulations and incentive programs such as "Meaningful Use", which is formally known as the EHR Incentive Program,{{cite web |title=Electronic Health Records (EHR) Incentive Programs |website=Centers for Medicare & Medicaid Services |url=http://www.cms.gov/Regulations-and-Guidance/Legislation/EHRIncentivePrograms/index.html }}{{cite web|url=http://healthit.hhs.gov/portal/server.pt?open%3D512%26objID%3D1325%26parentname%3DCommunityPage%26parentid%3D1%26mode%3D2 |title= Meaningful Use |website=Health Information Technology |publisher=U.S. Department of Health & Human Services |date=16 March 2010 |access-date=April 21, 2010 |url-status=dead |archive-url=https://web.archive.org/web/20100420005847/http://healthit.hhs.gov/portal/server.pt?open=512&objID=1325&parentname=CommunityPage&parentid=1&mode=2 |archive-date=April 20, 2010 }} are changing. Most HIEs and RHIOs remain tied to federal, state, or independent grant funding to remain operational. Some exceptions exist, such as the Indiana HIE.{{cite web|url=http://www.ihie.org/|title=Home |website=Indiana Health Information Exchange|access-date=13 April 2016}}{{cite web|last=McGee |first=Marianne |date=7 June 2012 |title=8 Health Information Exchanges Lead The Way |url=http://www.informationweek.com/interoperability/8-health-information-exchanges-lead-the-way/d/d-id/1104726?page_number=2 |website=Information Week |publisher=UBM |access-date=10 June 2012 |url-status=bot: unknown |archive-url=https://web.archive.org/web/20160425095807/http://www.informationweek.com/interoperability/8-health-information-exchanges-lead-the-way/d/d-id/1104726?page_number=2 |archive-date=25 April 2016 }}
Storage and gathering of information
=Data architecture models=
In a centralized model of HIE, there is a central (or master) database that holds a copy of every patient’s records. Information is uploaded to a single database from which any provider in the HIE can access and download. In a federated model of HIE, there is no master database. Records are exchanged electronically among providers when they need them.{{cite web|author=HIMSS HIE Guide Work Group |date=November 2009 |title=Topic Series: HIE Technical Models |publisher=Healthcare Information and Management Systems Society (HIMSS) |url=http://www.himss.org/files/HIMSSorg/content/files/2009HIETechnicalModels.pdf |archive-date=2014-03-19 |archive-url=https://web.archive.org/web/20140319013050/http://www.himss.org/files/HIMSSorg/content/files/2009HIETechnicalModels.pdf |url-status=dead }}{{cite web|url=http://www.himss.org/ASP/topics_rhio.asp |title=HIMSS RHIO / HIE |website=HIMSS |publisher=Healthcare Information and Management Systems Society |archive-date=2008-09-26 |archive-url=https://web.archive.org/web/20080926145115/http://www.himss.org/ASP/topics_rhio.asp |url-status=dead }}
=Patient consent =
Exchanges in the US must operate with patient consent to comply with not only the Health Insurance Portability and Accountability Act (HIPAA) but also a variety of state and federal laws and regulations. This was clarified by the Office of Civil Rights in the January 2013 Final Omnibus Rule Update to HIPAA.{{cite web|title=The Health Insurance Portability and Accountability Act (HIPAA) Omnibus Final Rule Summary |publisher=American Medical Association |date=19 February 2013 |url=http://www.ama-assn.org/resources/doc/washington/hipaa-omnibus-final-rule-summary.pdf |archive-date=2013-04-18 |archive-url=https://web.archive.org/web/20130418043425/http://www.ama-assn.org/resources/doc/washington/hipaa-omnibus-final-rule-summary.pdf |url-status=dead }}
Explicit consent and implicit consent are two methods for gaining patient consent. With explicit consent, or opt-in, a patient is not automatically enrolled into the HIE by default and generally must submit a written request to join the exchange. In implicit patient consent, or opt-out, patients give implicit consent to join an HIE when they agree to use the services of a healthcare provider, submit data into an HIE and sign the provider's Notice Of Privacy Practices. Patients can request to opt out of the HIE, generally with a written form.{{cite web|title=Opt-in Versus Opt-out: Consent Models for Health Information Exchange through Missouri's Statewide Health Information Exchange Network |date=14 April 2010 |website=Missouri Department of Social Services |url=http://dss.mo.gov/hie/leadership/pdf2010/optin_vs_optout_overview.pdf |archive-date=2010-05-27 |archive-url=https://web.archive.org/web/20100527180435/http://www.dss.mo.gov/hie/leadership/pdf2010/optin_vs_optout_overview.pdf |url-status=dead }}
Notable European health information exchanges
= Netherlands =
;Frysian Health Information Exchange
Connects Medical Centre Leeuwarden and Academic Center in Groningen with community hospitals like Nij Smellinghe Hospital in Drachten.{{cite web |title=Project References |website=Forcare |publisher=Forcare Canada Inc. |url=http://www.forcare.com/solutions/forcare-project-references/ |access-date=15 September 2016 |archive-url=https://web.archive.org/web/20160920130007/http://www.forcare.com/solutions/forcare-project-references/ |archive-date=20 September 2016 |url-status=dead }}{{cite web |first=John |last=Brosky |date=21 May 2010 |title=Dutch cardiology network enables real-time consultations |website=healthcare-in-europe.com |publisher=European Hospital |url=http://www.healthcare-in-europe.com/en/article/7234-dutch-cardiology-network-enables-real-time-consultations.html |access-date=15 September 2016 }}
The Friesland Regional Cardiology Network reduces patient hospital stays by one or two days..Once records are uploaded to the cardiology network, they remain available for consultation at any time, allowing healthcare providers to review a patient's previous episodes of care.
== North of the Netherlands – XDS Network ==
Hospitals in the Dutch provinces Groningen, Friesland, and Drenthe have created a (diagnostic) image exchange network to phase out CD/DVD-based exchanges using an IHE (XDS) platform. St. [http://www.gerrit-net.nl Gerrit], the local HIE organization, has gradually expanded the network since 2014, spanning 10 hospitals to date.
== Other ==
- ZorgNetOost{{cite web |title=Home |website=ZorgNetOost |language=nl |url=https://www.zorgnetoost.nl/ |access-date=27 September 2017 }}
- Radboud University Medical Center
- Image Exchange South East-Brabant – Maxima Medical Center, Elkerliek Hospital, Catharina Hospital Eindhoven, St. Anna Hospital
- Regional Exchange Network West-Brabant{{cite web |title=Stichting Regionaal Elektronisch Netwerk West-Brabant |language=nl |url=http://www.renwbr.nl/ |access-date=27 September 2017 }}
- Image Exchange Network Breda – Amphia Hospital, BVI,{{Expand acronym|date=September 2017}} Elisabeth-TweeSteden Hospital{{cite web|url=https://www.ihe-nl.org/uploads/bestanden/a4_ihe_--_Success_Story_West_and_Mid_Brabant_feb2015-1_(3)_(1).pdf |title=Newsletter |date=2015 |website=ihe-nl.org |access-date=2019-05-21}}
- Rotterdam Exchange Network RijnmondNet{{cite web|url=https://www.ihe-nl.org/uploads/bestanden/SS_IHE-XDS-platform-RijnmondNet-ENG.pdf |title=Newsletter |website=ihe-nl.org |access-date=2019-05-21}}
- TRIJN{{cite web |title=Trijn |language=nl |url=https://trijn.nu/ |access-date=27 September 2017 }}
- Zorgring Noord-Holland Noord{{cite web |title=Stichting Zorgring NHN |language=nl |url=https://www.zorgring.nl/ |access-date=27 September 2017 }}
= United Kingdom =
- Sussex and Surrey
- [https://vimeo.com/93341130 Bristol]
- Great Ormond Street [https://vimeo.com/90301954 Hospital]
= Ireland =
- NIMIS
= Finland =
- Helsinki-Uusimaa Health District
Notable United States Health Information Exchanges
=Individual exchanges=
{{More citations needed section|date=September 2016}}
;
== 1. (CRISP) ==
CRISP serves as the state-designated HIE for Maryland and the District of Columbia. It is a nonprofit organization that connects healthcare providers and patients through its platform to enhance care coordination and patient outcomes. CRISP integrates health information from hospitals, laboratories, pharmacies, and other healthcare entities, enabling providers to access real-time patient data. It focuses on ensuring that providers have access to the information they need to make informed clinical decisions.{{Cite web |title=Home |url=https://www.crisphealth.org/ |access-date=2025-01-28 |website=Improve Outcomes and Enhance the Patient Experience {{!}} CRISP}}
Key Features:
- Real-time health data sharing.
- Analytics services to support public health initiatives.
- Broad provider participation, including small practices and large hospital systems.{{Cite web |title=For Patients |url=https://www.crisphealth.org/for-patients/#what-is-crisp |access-date=2025-01-28 |website=Improve Outcomes and Enhance the Patient Experience {{!}} CRISP}}
== 2. Health Info Net ==
Health Info Net operates as the state-designated HIE in Maine, offering a centralized repository of health data for its users. It connects hospitals, clinics, and other healthcare providers, creating a comprehensive view of patients' medical histories. By reducing redundant testing and improving clinical decision-making, Health Info Net aims to enhance the quality and efficiency of healthcare delivery.{{Cite web |title=For Patients |url=https://hinfonet.org/for-patients/#learn |access-date=2025-01-28 |website=HealthInfoNet |language=en-US}}
Key Features:
== 3. Arizona Health Information Exchange ==
Arizona's Health Information Exchange, led by the state's Medicaid agency, provides a web-based platform to facilitate the exchange of health information among providers. This system helps bridge the gap between healthcare organizations and ensures that patient's medical records are accessible regardless of the provider they visit. The Arizona HIE has been instrumental in improving care coordination and reducing costs associated with fragmented care.{{Cite web |last=Contexture |title=Arizona Health Information Exchange |url=https://contexture.org/arizona-health-information-exchange/ |access-date=2025-01-28 |website=Contexture |language=en-US}}
Key Features:
== 4. Indiana Health Information Exchange (IHIE) ==
The Indiana Health Information Exchange is a nonprofit organization recognized as one of the largest and most comprehensive HIEs in the United States. IHIE connects hospitals, physician practices, laboratories, and other healthcare entities across Indiana, facilitating a seamless flow of information. Its services are designed to provide healthcare providers with complete and timely data to support better decision-making and patient care.{{Cite web |last=laura |title=Indiana Health Information Exchange - Your Healthcare Records Matter |url=https://www.ihie.org/ |access-date=2025-01-28 |website=Indiana Health Information Exchange |language=en-US}}
Key Features:
== 5. Manifest MedEx ==
Manifest MedEx is a nonprofit HIE based in California, focusing on real-time health information exchange to improve care coordination and patient outcomes. It collaborates with hospitals, health plans, and healthcare providers to deliver a comprehensive view of patient data. Manifest MedEx emphasizes the importance of actionable insights to drive better healthcare outcomes.{{Cite web |title=Home |url=https://www.manifestmedex.org/ |access-date=2025-01-28 |website=Manifest MedEx |language=en-US}}
Key Features:
== 6. Colorado Regional Health Information Organization (CORHIO) ==
The Colorado Regional Health Information Organization serves as the state-designated HIE for Colorado. CORHIO connects healthcare providers, including hospitals, clinics, long-term care facilities, and laboratories, to ensure seamless access to patient data. Its mission is to improve the quality, safety, and cost-effectiveness of healthcare delivery through technology and collaboration.{{Cite web |title=Home |url=https://www.corhio.org/ |archive-url=http://web.archive.org/web/20250108134249/https://www.corhio.org/ |archive-date=2025-01-08 |access-date=2025-01-28 |website=www.corhio.org |language=en}}
Key Features:
- A comprehensive network of healthcare providers across Colorado.
- Focus on public health reporting and disease tracking.
- Support for rural healthcare providers through specialized programs.{{Cite web |date=2017-06-05 |title=CORHIO – Colorado Regional Health Information Organization |url=https://career.du.edu/companies/corhio-colorado-regional-health-information-organization/ |access-date=2025-01-28 |website=Career & Professional Development {{!}} University of Denver |language=en-US}}
See also
- DICOM (Digital Imaging and Communications in Medicine)
- LOINC (Logical Observation Identifiers Names and Codes)
- Health informatics
- Health Level 7 (HL7)
- Integrating the Healthcare Enterprise (IHE)
- Medical imaging
- Regional Health Information Organization (RHIO)
References
{{Reflist}}
=Sources=
{{refbegin}}
- {{cite journal |last1=McGowan |first1=Julie J. |last2=Overhage |first2=J. Marc |last3=Barnes |first3=Mike |last4=McDonald |first4=Clement J. |title=Indianapolis I3: The third generation Integrated Advanced Information Management Systems |journal=Journal of the Medical Library Association |volume=92 |issue=2 |pages=179–87 |date=April 2004 |pmid=15098046 |pmc=385298 }}
- {{cite report |first1=Janet |last1=Marchibroda |first2=Jennifer Covich |last2=Bordenick |publisher=eHealth Initiative |location=Washington, DC |title=Emerging Trends and Issues in Health Information Exchange: Selected findings from eHealth Initiative Foundation's Second Annual Survey of State, Regional and Community-based Health Information Exchange Initiatives and Organizations |date=29 August 2005 |oclc=61482941 |url=https://ehi-rails-app.s3.amazonaws.com/uploads/article/file/157/2005_eHI_HIE-Survey-Report.pdf }}
- {{cite book |last=Hagland |first=Mark |date=2009 |title=Transformative Quality: The Emerging Revolution in Health Care Performance |publisher=CRC Press |location=New York |isbn=978-1-4200-8492-4 |oclc=502919031 }}
{{refend}}
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