International Bureau for Epilepsy
{{Infobox organization
| name = International Bureau for Epilepsy
| formation = 1961
| image = IBE-Social-300
| abbreviation = IBE
| founding_location = Washington DC, USA
| type = Nonprofit organisation
| website = https://www.ibe-epilepsy.org/
}}
The International Bureau for Epilepsy (IBE) is a non-for-profit started in 1961{{cite web|title=Mission, Objectives and Strategy for Epilepsy|url=http://www.ibe-epilepsy.org/about-us/mission-objectives-strategy/|work=International Bureau for Epilepsy|accessdate=10 January 2014|url-status=dead|archiveurl=https://web.archive.org/web/20140108143900/http://www.ibe-epilepsy.org/about-us/mission-objectives-strategy/|archivedate=8 January 2014}} which aims to improve the social condition and quality of life of people with epilepsy.{{Cite web |date=11 April 2024 |title='About Us' |url=https://www.ibe-epilepsy.org/about/ |website=International Bureau for Epilepsy}} The organization addresses social problems such as employment, education, driving license restrictions and public awareness.{{Cite web |date=17 April 2024 |title=IBE - International Bureau for Epilepsy |url=https://www.eu-patient.eu/Members/The-EPF-Members/Associate-Member/IBE-epilepsy/ |website=European Patients Forum}} Its members are from both the lay public and a professional background.{{cite web|title=International epilepsy organisations|url=https://www.epilepsy.org.uk/about/international-epilepsy-organisations|accessdate=10 January 2014}} IBE has a network of 140 chapters in 100 countries{{Cite web |last=Trinka |first=Eugen |date=7 September 2020 |title=Joint Statement for the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) |url=https://cdn.who.int/media/docs/librariesprovider2/regional-committee-meeting-reports/2020/ai2intleagueintburepilepsy.pdf?sfvrsn=731212b0_5&download=true |access-date=11 April 2024 |website=World Health Organization}} and often collaborates with the International League Against Epilepsy (ILAE) to increase understanding about epilepsy.{{cite web|title=Epilepsy.org|url=http://www.epilepsy.org/|accessdate=14 May 2014}}
History
The IBE was formed in 1961, after it was recognised at the ILAE congress the need to establish an organisation that specifically addressed the psycho-social aspects of epilepsy. In 1997, the IBE, the World Health Organization and the ILAE launched the 'Out of the Shadows' Global Campaign against epilepsy,{{cite book|last=Prasher|first=Vee P.|title=Epilepsy and intellectual disabilities|year=2008|publisher=Springer|location=New York|isbn=9781848002593|page=212|url=https://books.google.com/books?id=Oze51wrSUGEC&pg=PA212|author2=Kerr, Mike P. }} with the aim of improving acceptability, treatment, services and epilepsy preventions globally, as well as working towards closing the treatment gap.{{Cite web |date=26 April 2024 |title=Global Campaign Against Epilepsy |url=https://www.ilae.org/about-ilae/public-policy-and-advocacy/global-campaign-against-epilepsy#:~:text=The%20Global%20Campaign%20Against%20Epilepsy,of%20reducing%20the%20treatment%20gap. |website=International League Against Epilepsy}}
Global Chapters
The International Bureau for Epilepsy consists of chapters representing national epilepsy associations globally, organized into seven regional structures.{{Cite web |date=11 April 2024 |title=IBE Chapters |url=https://www.ibe-epilepsy.org/about/ibe-chapters/ |website=International Bureau for Epilepsy}}
International Epilepsy Day
International Epilepsy Day began in 2015 and is organised each year on the second Monday of February by the IBE and the ILAE aimed at raising awareness of epilepsy.{{Cite web |date=26 April 2024 |title=IBE Strategic Plan |url=https://www.ibe-epilepsy.org/wp-content/uploads/2022/04/IBE-Strategic-Plan-22-FINAL.pdf |website=International Bureau for Epilepsy}} In recent years, International Epilepsy Day drives the implementation of the World Health Organization's (WHO) 10-year Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP).{{Cite web |date=17 April 2024 |title=International Epilepsy Day |url=https://internationalepilepsyday.org/ |website=International Epilepsy Day}}
References
{{reflist}}
External links
- {{Official website|https://www.ibe-epilepsy.org/}}
{{Authority control}}