Office of Rare Diseases Research
The Office of Rare Diseases Research is a division of the US National Center for Advancing Translational Sciences (NCATS) that oversees the Rare Diseases Clinical Research Network and Genetic and Rare Diseases Information Center.{{cite web |title=Divisions & Offices |url=https://ncats.nih.gov/about/center/org |website=National Center for Advancing Translational Sciences |publisher=National Institutes of Health |accessdate=8 July 2018}}
History
The Office of Rare Diseases Research was established in 1993 within the Office of the Director of the NIH. Its responsibilities were mandated by statute by the Rare Diseases Act of 2002.{{cite web |title=The Office of Rare Diseases Research (ORDR) |url=https://www.rarediseasesnetwork.org/spotlight/spring2011/ORDR/index.htm |website=Rare Diseases Clinical Research Network |accessdate=8 July 2018}}{{cite web |title=Office of Rare Diseases Research (ORDR) Brochure |url=https://rarediseases.info.nih.gov/asp/resources/ord_brochure.html |website=Genetic and Rare Diseases Information Center |publisher=National Institutes of Health |accessdate=8 July 2018}} In 2011, the office became part of the newly created NCATS.{{cite press release |title=Kaufmann Appointed Head of NCATS' Office of Rare Diseases Research |url=https://ncats.nih.gov/news/releases/2015/ordr-director |date=September 2015 |website=National Center for Advancing Translational Sciences |publisher=National Institutes of Health |accessdate=8 July 2018}} ORDR is currently headed by Dr. Anne R. Pariser, who took over the position in February 2018.{{Cite web|url=https://ncats.nih.gov/staff/pariserar|title=Staff Profile: Anne R. Pariser|last=|first=|date=|website=National Center for Advancing Translational Sciences|archive-url=|archive-date=|access-date=}}
References
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