YODA Project

{{Short description|Project to promote open data in clinical research}}

The YODA (Yale Open Data Access) Project is a Yale University project to promote open data in clinical research.

The YODA Project has served as a trusted intermediary in a variety of collaborative efforts to make scientific data more broadly available to researchers. It is a response to expanding demands for health information.{{cite journal|last1=Taichman|first1=Darren B.|last2=Backus|first2=Joyce|last3=Baethge|first3=Christopher|last4=Bauchner|first4=Howard|last5=de Leeuw|first5=Peter W.|last6=Drazen|first6=Jeffrey M.|last7=Fletcher|first7=John|last8=Frizelle|first8=Frank A.|last9=Groves|first9=Trish|last10=Haileamlak|first10=Abraham|last11=James|first11=Astrid|last12=Laine|first12=Christine|last13=Peiperl|first13=Larry|last14=Pinborg|first14=Anja|last15=Sahni|first15=Peush|last16=Wu|first16=Sinan|title=Sharing Clinical Trial Data — A Proposal from the International Committee of Medical Journal Editors|journal=New England Journal of Medicine|date=28 January 2016|volume=374|issue=4|pages=384–386|doi=10.1056/NEJMe1515172|pmid=26786954|issn=0028-4793|pmc=4720169}}

The YODA Project is currently partnering with Johnson & Johnson..{{cite web |url= https://www.forbes.com/sites/matthewherper/2014/01/30/in-stunning-win-for-open-science-johnson-johnson-decides-to-release-its-clinical-trial-data-to-researchers/ |title=In Stunning Win For Open Science, Johnson & Johnson Decides To Release Its Clinical Trial Data To Researchers - Forbes |first=Matthew |last=Herper |work=forbes.com |date=30 January 2014 |access-date=12 May 2015}}{{cite web |url= https://www.bloomberg.com/news/articles/2014-01-30/j-j-sets-drug-data-free-in-yoda-collaboration-with-yale |title=J&J Sets Drug Data Free in 'YODA' Collaboration With Yale |first=Drew |last=Armstrong |work=bloomberg.com |date=31 January 2014 |access-date=12 May 2015}}{{cite web|title=Johnson & Johnson Announces Clinical Trial Data Sharing Agreement with Yale School of Medicine {{!}} Johnson & Johnson|url=http://www.jnj.com/news/all/johnson-and-johnson-announces-clinical-trial-data-sharing-agreement-with-yale-school-of-medicine|website=www.jnj.com|access-date=22 August 2016}} SI-BONE is also a partner.{{cite web|last1=Hofheinz|first1=Elizabeth|title=Yale, SI-BONE Commence Data Transparency Project {{!}} Orthopedics This Week|url=https://ryortho.com/breaking/yale-si-bone-commence-data-transparency-project/|website=ryortho.com|access-date=22 August 2016}} Inquiries for data availability for unlisted trials from these data holders can also be submitted.{{cite web|url=https://biolincc.nhlbi.nih.gov/studies/yoda/|title=BioLINCC: Yale University Open Data Access Project (YODA)|publisher=National Heart, Lung, and Blood Institute|access-date=17 August 2016}} {{PD-notice}}

This project is being examined as a pilot for a new way of sharing information.{{cite web |url= http://www.healthdataconsortium.org/article_content.asp?article=25 |title=Innovators in Health Data Series: The Yale Open Data Access (YODA) Project - Health Data Consortium |first1=Abdul |last1=Shaikh |first2=Gus |last2=Mutscher |work=Health Data Consortium |date=4 August 2014 |access-date=12 May 2015}}{{cite journal|last1=Krumholz|first1=Harlan M.|last2=Ross|first2=Joseph S.|last3=Gross|first3=Cary P.|last4=Emanuel|first4=Ezekiel J.|last5=Hodshon|first5=Beth|last6=Ritchie|first6=Jessica D.|last7=Low|first7=Jeffrey B.|last8=Lehman|first8=Richard|title=A Historic Moment for Open Science: The Yale University Open Data Access Project and Medtronic|journal=Annals of Internal Medicine|volume=158|issue=12|year=2013|pages=910–911|issn=0003-4819|doi=10.7326/0003-4819-158-12-201306180-00009|pmid=23778908|pmc=5459387}}