joint replacement registry
A joint replacement registry is a system of collecting information of arthroplasty outcomes at a population (often national) level, in order to provide an evidence-base for safe and effective treatment options.
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Background
The UK registry, the NJR, was set up as recommendation of a Royal College of Surgeons of England review into the high-profile failure of the 3M Capital Hip.{{cite web | url=http://www.rcseng.ac.uk/surgeons/research/surgical-research/docs/An%20Investigation%20of%20the%20Performance%20of%20the%203M%20Capital%20Hip%20System%20Report%202001.pdf | title=RCS 3M report | accessdate=24 August 2014}}
Information collected
Registers collect information on a combination of hip replacements, knee replacements (both total and unicompartmental), shoulder replacements, ankle replacements and elbow replacements. Some countries exclude hemiarthroplasties done for traumatic hip fractures.
Initially designed only to record surgeon and implant performance, the main outcome collected was implant failure, however recently patient-reported outcome measures are being added.
Research
Given the amount of information stored, the data from many of the registries is used as the basis of scientific papers, for example on the metal-on-metal hip controversy.{{cite journal | title=Failure rates of stemmed metal-on-metal hip replacements: analysis of data from the National Joint Registry of England and Wales | vauthors=Smith AJ, Dieppe P, Vernon K, Porter M, Blom AW, ((National Joint Registry of England and Wales)) | journal=Lancet |date=Mar 2012 | volume=379 | issue=9822 | pages=1199–204 | PMID=22417410 | doi=10.1016/S0140-6736(12)60353-5}}
Worldwide registries
There are currently 31 national members of the International Society of Arthroplasty Registers (ISAR).{{cite web | url=https://www.isarhome.org/members | title=ISAR directory | accessdate=24 August 2014}} In addition, in the United States, there are 10 regional or private registries collecting data.
| class="wikitable" |
| Country
! Type ! Year started ! Name |
|---|
| UK
| National | 2003 | [http://www.njrcentre.org.uk NJR] |
| Scotland
| National | | [https://www.arthro.scot.nhs.uk/index.html SAP] |
| Ireland
| National | 2014 | [https://www.noca.ie/audits/irish-national-orthopaedic-register INOR] |
| Italy
| National | | [https://ripo.cineca.it/ RIPO] |
| Portugal
| National | 2009 | [http://www.rpa.spot.pt/ RPA] |
| Romania
| National | 2001 | [http://www.rne.ro/site RNE] |
| Germany
| National | | [https://www.eprd.de/de EPRD] |
| Egypt
| National | 2007 | [http://egyorth.org/Research/Research.aspx?ID=255 ECAR] |
| Australia
| National | 1999 | [https://aoanjrr.sahmri.com AOANJRR] |
| Japan
| National | 2002 | [https://jsra.info/jar-top.html JAR] |
| Sweden
| National | 1975 | [http://www.myknee.se/en SKAR] |
| Sweden
| National | 1979 | [http://www.shpr.se/en SHAR] |
| Canada
| National | 2003 | [http://www.cihi.ca/CIHI-ext-portal/internet/en/document/types+of+care/specialized+services/joint+replacements/cjrr_metadata CJRR] |
| The Netherlands
| National | 2007 | [http://www.lroi.nl/en/home LROI] |
| Slovakia
| National | 1926 | [http://www.sar.mfn.sk SAR] |
| New Zealand
| National | 1999 | [https://web.archive.org/web/20141013172123/http://www.nzoa.org.nz/nz-joint-registry NZJR] |
| Denmark
| National | 1997 | [http://www.dhr.dk/ DHR] |
| Norway
| National | 1994 | [http://nrlweb.ihelse.net/eng/ NAR] |
| Finland
| National | 1980 | |
| Iran
|National |2016 |
| rowspan="3"|United States
| National | 2012 | [http://www.ajrr.net/ AJRR] |
| Regional
| | [http://www.caljrr.org/ CJRR] |
| Private
| 2001 | [http://www.kpimplantregistries.org/ KPTJRR] |
References
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