list of biobanks

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A biobank is a physical place which stores biological specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This article contains a list of biobanks.{{cn|date=December 2023}}

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Classification

Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entity (government, commercial enterprise, or private research institution), by their geographical location, or by what sorts of samples they collect.

Biobanks may be classified by purpose or design. Disease-oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases, perhaps to look for biomarkers affiliated with disease.{{Cite journal | last1 = Bevilacqua | first1 = G. | last2 = Bosman | first2 = F. | last3 = Dassesse | first3 = T. | last4 = Höfler | first4 = H. | last5 = Janin | first5 = A. | last6 = Langer | first6 = R. | last7 = Larsimont | first7 = D. | last8 = Morente | first8 = M. M. | last9 = Riegman | first9 = P. | last10 = Schirmacher | first10 = P. | last11 = Stanta | first11 = G. | last12 = Zatloukal | first12 = K. | last13 = Caboux | first13 = E. | last14 = Hainaut | first14 = P. | title = The role of the pathologist in tissue banking: European Consensus Expert Group Report | journal = Virchows Archiv | volume = 456 | issue = 4 | pages = 449–454 | year = 2010 | pmid = 20157825 | pmc = 2852521 | doi = 10.1007/s00428-010-0887-7}} Population-based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people, perhaps to look for biomarkers for disease susceptibility in a general population.{{Cite journal | last1 = Riegman | first1 = P. H. J. | last2 = Morente | first2 = M. M. | last3 = Betsou | first3 = F. | last4 = De Blasio | first4 = P. | last5 = Geary | first5 = P. | author6 = Marble Arch International Working Group on Biobanking for Biomedical Research | title = Biobanking for better healthcare | journal = Molecular Oncology | volume = 2 | issue = 3 | pages = 213–222 | year = 2008 | pmid = 19383342 | pmc = 5527804 | doi = 10.1016/j.molonc.2008.07.004}}

class="wikitable sortable"
colspan="7" style="background-color: #CCEEEE;" | List of biobanks
Biobank

! Affiliation

! Focus

! Type

! Location

! Founding

! Notes

All of Us

|

| Population

| non-profit

| United States

|

|

Acutelines

|University of Groningen & University Medical Centre Groningen

|Acute illness

|non-profit

|Netherlands

|2020

|{{Cite journal |last=Avest |first=Ewoud ter |last2=Munster |first2=Barbara C. van |last3=Wijk |first3=Raymond J. van |last4=Tent |first4=Sanne |last5=Horst |first5=Sanne Ter |last6=Hu |first6=Ting Ting |last7=Heijst |first7=Lisanne E. van |last8=Veer |first8=Felien S. van der |last9=Beuningen |first9=Fleur E. van |last10=Maaten |first10=Jan Cornelis ter |last11=Bouma |first11=Hjalmar R. |date=2021-07-01 |title=Cohort profile of Acutelines: a large data/biobank of acute and emergency medicine |url=https://bmjopen.bmj.com/content/11/7/e047349 |journal=BMJ Open |language=en |volume=11 |issue=7 |pages=e047349 |doi=10.1136/bmjopen-2020-047349 |issn=2044-6055 |pmid=34266842|pmc=8286769 }}

Autism Genetic Resource Exchange

| Autism Speaks

| Autism

| non-profit

| North America and Asia

|

|

Avon Longitudinal Study of Parents and Children

| University of Bristol

|

| non-profit

| United Kingdom

| 1990

| {{cite journal|last=Boyd|first=A.|author2=Golding, J. |author3=Macleod, J. |author4=Lawlor, D. A. |author5=Fraser, A. |author6=Henderson, J. |author7=Molloy, L. |author8=Ness, A. |author9=Ring, S. |author10= Davey Smith, G.|author-link10=George Davey Smith| title=Cohort Profile: The 'Children of the 90s'--the index offspring of the Avon Longitudinal Study of Parents and Children|journal=International Journal of Epidemiology|date=16 April 2012|volume=42|issue=1|pages=111–127|doi=10.1093/ije/dys064 |pmid=22507743 |pmc=3600618}}{{cite journal|last=Levitt|first=Mairi|title=Relating to Participants: How Close Do Biobanks and Donors Really Want to Be?|journal=Health Care Analysis|volume=19|issue=3|pages=220–230|doi=10.1007/s10728-011-0193-9|pmid=21915714|year=2011|s2cid=13953737}}

BioBank Graz

| Medical University of Graz

|

| non-profit

| Austria

|

| {{Cite web| title = About Biobank Graz| accessdate = 2021-03-16| url = https://biobank.medunigraz.at}}

Vilnius Santaros Klinikos Biobank

| Vilnius University Hospital Santaros Klinikos

|

| non-profit

| Lithuania

|

|

BioBank Japan

| RIKEN, University of Tokyo

| Population, personalized medicine

| non-profit

| Japan

| 2003

| {{Cite journal|last1=Nagai|first1=Akiko|last2=Hirata|first2=Makoto|last3=Kamatani|first3=Yoichiro|last4=Muto|first4=Kaori|last5=Matsuda|first5=Koichi|last6=Kiyohara|first6=Yutaka|last7=Ninomiya|first7=Toshiharu|last8=Tamakoshi|first8=Akiko|last9=Yamagata|first9=Zentaro|last10=Mushiroda|first10=Taisei|last11=Murakami|first11=Yoshinori|date=March 2017|title=Overview of the BioBank Japan Project: Study design and profile|url= |journal=Journal of Epidemiology|language=en|volume=27|issue=3|pages=S2–S8|doi=10.1016/j.je.2016.12.005|pmc=5350590|pmid=28189464}}

Canadian Biosample Repository

| University of Alberta

|

| non-profit

| Canada

|

|

CARTaGENE biobank

| Centre hospitalier universitaire Sainte-Justine

|

| non-profit

| Quebec

| 2009

| {{cite journal|last=Awadalla|first=Philip |author2=Catherine Boileau |author3=Yves Payette |author4=Youssef Idaghour |author5=Jean-Philippe Goulet |author6=Bartha Knoppers |author7=Pavel Hamet |author8=Claude Laberge|title=Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics|journal=International Journal of Epidemiology|date=October 15, 2012|pages=1285–99|doi=10.1093/ije/dys160|volume=42 |issue=5 |pmid=23071140|doi-access=free }}{{cite web|title=Cartagene|url=http://www.cartagene.qc.ca/en|work=cartagene.qc.ca|access-date=3 April 2013}}

Cooperative Human Tissue Network

|

| Cancer

| government

| USA

| 1987

|

Coriell Institute for Medical Research

|

| Genetic Disorders, rare diseases, Stem Cells

| non-profit

| United States

| 1953

|

DeCODE genetics

|

|

| commercial

| Iceland

|

|{{cite web| title =From Genes to Drugs| work =decode.com| publisher =deCODE genetics| url =http://www.decode.com/From-Genes-to-Drugs.php| access-date =2008-05-04| archive-url =https://web.archive.org/web/20080509070851/http://www.decode.com/From-Genes-to-Drugs.php| archive-date =2008-05-09| url-status =dead}}

Estonian Genome Project

|University of Tartu

|

| non-profit

| Estonia

| 2000

|

EuroBioBank

|

| Rare diseases

| non-profit

| Europe

|

|

FINBB

|

|Population

|non-profit

|Finland

|

|{{Cite web|url=https://finbb.fi/|title=FinBioBank|language=en|access-date=2019-11-23}}

FinnGen

|

|Population, disease focused

|public-private

|Finland

|2017

|{{Cite web|url=https://www.finngen.fi/|title=FinnGen-tutkimushanke vie suomalaiset löytöretkelle genomitietoon {{!}} Drupal|website=finngen.fi|access-date=2019-11-23}}

Generation Scotland

| NHS Scotland

|

| government

| Scotland

| 1999

| {{cite journal |vauthors=Smith BH, Campbell H, Blackwood D, etal |title=Generation Scotland: the Scottish Family Health Study; a new resource for researching genes and heritability |journal=BMC Medical Genetics |volume=7 |pages=74 |year=2006 |pmid=17014726 |pmc=1592477 |doi=10.1186/1471-2350-7-74 |doi-access=free }}{{cite journal |vauthors=Macleod AK, Liewald DC, McGilchrist MM, Morris AD, Kerr SM, Porteous DJ |title=Some principles and practices of genetic biobanking studies |journal=The European Respiratory Journal |volume=33 |issue=2 |pages=419–25 |date=February 2009 |pmid=19181915 |doi=10.1183/09031936.00043508|doi-access=free }}

Genomics England

|

|Rare diseases, cancer

|public-private

|England

|2013

|{{Cite web|url=https://www.genomicsengland.co.uk/|title=Genomics England {{!}} 100,000 Genomes Project|language=en-US|access-date=2019-11-23}}

HUNT Biobank

| Norwegian University of Science and Technology

|

| non-profit

| Norway

| 2002

|

Integrated Biobank of Luxembourg

|Luxembourg Institute of Health

|Cancer, immunology

|

|Luxembourg

|

|

Interdisziplinäre Biomaterial- und Datenbank Würzburg

|University of Würzburg & Universitätsklinikum Würzburg

|

|public agency

|Würzburg, Germany

|2013

|{{Cite web|url=https://www.ukw.de/interdisziplinaere-einrichtungen/interdisziplinaere-biomaterial-und-datenbank-wuerzburg/startseite/|title=Interdisziplinäre Biomaterial- und Datenbank Würzburg |website=ukw.de|access-date=2022-10-13}}

Kaiser Permanente Research Bank

| Kaiser Permanente

| Population

|

| United States

| 2016{{cite web |url=https://share.kaiserpermanente.org/article/kaiser-permanente-research-bank-collects-genetic-and-environmental-data-to-improve-health-and-care-delivery/ |title=Kaiser Permanente Research Bank Collects Genetic and Environmental Data to Improve Health and Care Delivery |date= 11 April 2018 |publisher=Kaiser Permanente}}

| {{cite web |url=https://researchbank.kaiserpermanente.org/ |title=Kaiser Permanente Research Bank |publisher=Kaiser Permanente |access-date= 8 November 2018}}

Lifelines

|University of Groningen & University Medical Centre Groningen

|Healthy aging

|non-profit

|Groningen, The Netherlands

|2006

Million Veterans Project

| United States Department of Veterans Affairs

| American veterans

| non-profit

| United States

|

| {{Cite journal|last1=Gaziano|first1=John Michael|last2=Concato|first2=John|last3=Brophy|first3=Mary|last4=Fiore|first4=Louis|last5=Pyarajan|first5=Saiju|last6=Breeling|first6=James|last7=Whitbourne|first7=Stacey|last8=Deen|first8=Jennifer|last9=Shannon|first9=Colleen|last10=Humphries|first10=Donald|last11=Guarino|first11=Peter|date=February 2016|title=Million Veteran Program: A mega-biobank to study genetic influences on health and disease|journal=Journal of Clinical Epidemiology|language=en|volume=70|pages=214–223|doi=10.1016/j.jclinepi.2015.09.016|pmid=26441289|doi-access=free}}

MyCode

| Geisinger Health System

| Electronic health records, personalized medicine

| commercial

| Pennsylvania, United States

| 2007

| {{cite journal | last1=Carey | first1=David J. | last2=Fetterolf | first2=Samantha N. | last3=Davis | first3=F. Daniel | last4=Faucett | first4=William A. | last5=Kirchner | first5=H. Lester | last6=Mirshahi | first6=Uyenlinh | last7=Murray | first7=Michael F. | last8=Smelser | first8=Diane T. | last9=Gerhard | first9=Glenn S. | last10=Ledbetter | first10=David H. | title=The Geisinger MyCode community health initiative: an electronic health record–linked biobank for precision medicine research | journal=Genetics in Medicine | publisher=Elsevier BV | volume=18 | issue=9 | year=2016 | issn=1098-3600 | doi=10.1038/gim.2015.187 | pages=906–913| pmid=26866580 | doi-access=free | pmc=4981567 }}

nPOD

| University of Florida, JDRF

| Diabetes

| non-profit

| United States

| 2007

| {{Cite web|url=http://www.jdrfnpod.org|title=JDRF nPOD {{!}} Network for Pancreatic Organ Donors with Diabetes|website=jdrfnpod.org|access-date=2016-09-22}}

PATH Biobank

|

| Breast cancer

| non-profit

| Germany

| 2002

|

Penn Medicine BioBank

|University of Pennsylvania

|Medical-academic

|non-profit

|Pennsylvania, United States

|2008

|{{Cite web |title=Penn Medicine BioBank - Home |url=https://pmbb.med.upenn.edu/index.php |access-date=2025-04-29 |website=pmbb.med.upenn.edu}}{{Cite journal |last1=Verma |first1=Anurag |last2=Damrauer |first2=Scott M. |last3=Naseer |first3=Nawar |last4=Weaver |first4=JoEllen |last5=Kripke |first5=Colleen M. |last6=Guare |first6=Lindsay |last7=Sirugo |first7=Giorgio |last8=Kember |first8=Rachel L. |last9=Drivas |first9=Theodore G. |last10=Dudek |first10=Scott M. |last11=Bradford |first11=Yuki |last12=Lucas |first12=Anastasia |last13=Judy |first13=Renae |last14=Verma |first14=Shefali S. |last15=Meagher |first15=Emma |date=2022-11-29 |title=The Penn Medicine BioBank: Towards a Genomics-Enabled Learning Healthcare System to Accelerate Precision Medicine in a Diverse Population |journal=Journal of Personalized Medicine |volume=12 |issue=12 |pages=1974 |doi=10.3390/jpm12121974 |doi-access=free |issn=2075-4426 |pmc=9785650 |pmid=36556195}}

Plasma Services Group

|

|Autoimmune, Infectious, Coagulation, Diagnostics{{Cite web|title=Plasma Services Group - The Difference is in The Data|url=https://www.plasmaservicesgroup.com/|access-date=2020-12-11|website=Plasma Services Group|language=en-US}}

|commercial

|United States

|2017

|

Sapien Biosciences

|Apollo Hospitals & Saarum Innovations

|Population, with special focus on tailoring treatment for Cancer

|private

|India (headquartered in Hyderabad)

|2012

|{{Cite web|title=Sapien Biosciences {{!}} Asia's first biobank led CDx & phenotypic drug discovery company|url=https://sapienbio.co.in/|access-date=2020-11-19|language=en-US}}

{{ill|Signature biobank|fr|Biobanque Signature}}

|Research centre of the Montreal Mental Health Institute

|Mental health

|non-profit

|Canada (Quebec)

|2012

|{{Cite web |title=Banque Signature {{!}} Accès aux données et aux biospécimens |url=https://www.banquesignature.ca/ |access-date=2023-03-27 |website=Banque Signature |language=fr-FR}}

The Malaysian Cohort

| National University of Malaysia

|

| non-profit

| Malaysia

| 2003

|

Tohoku Medical Megabank Project

|Tohoku University, Iwate Medical University

|Population, Birth and Three-Generation

|non-profit

|Japan

|2012

|{{Cite web|date=2015-02-10|title=ToMMo | Tohoku Medical Megabank Organization|url=https://www.megabank.tohoku.ac.jp/english/|access-date=2021-12-27|website=ToMMo | Tohoku Medical Megabank Organization|language=ja}}{{Cite web|title=IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION|url=http://iwate-megabank.org/en|access-date=2022-01-05|website=IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION|language=ja}}

UK Biobank

|

|

| non-profit

| United Kingdom

| 2006

|{{Cite web|url=https://www.ukbiobank.ac.uk/|title=UK Biobank|language=en-GB|access-date=2019-11-23}}

Biobank Sweden

|Health and Social Care Inspectorate

|Collaborative biobank infrastructure (nearly 250 biobanks)

|government

|Sweden

|2017

|{{Cite web |title=Guide to Biobanks in Sweden |url=https://biobanksverige.se/wp-content/uploads/k7-guide-to-biobanks-in-sweden.pdf |access-date=2023-03-03 |website=biobanksverige.se |language=en-GB}}{{Cite web |title=About Biobank Sweden |url=https://biobanksverige.se/en/about-biobank-sweden/ |access-date=2023-03-03 |website=biobanksverige.se |language=en-GB}}

References

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